Journal article
Heightened perception of breast cancer risk in young women at risk of familial breast cancer
R Glassey, M O’Connor, A Ives, C Saunders, S O’Sullivan, SJ Hardcastle
Familial Cancer | SPRINGER | Published : 2018
Abstract
The objective of this study was to explore the factors that influence perceived personal risk of developing breast cancer (BC) in younger women (<35) who are considering or have undergone bilateral prophylactic mastectomy (BPM). Qualitative interviews guided by interpretative phenomenological analysis were conducted with 46 women who had a strong family history of BC and had either undergone (n = 26) or were considering (n = 20) BPM. Participants were recruited from Australia and New Zealand via hospitals, a genetics clinic, a research cohort, a registry and online. Three main themes were identified: information that increases fear of BC and death, underlying anxiety and fear and screening a..
View full abstractGrants
Awarded by Foundation for the National Institutes of Health
Funding Acknowledgements
We wish to thank the women who participated in this study, Genetic Services of Western Australia and the two hospitals involved for their help in recruitment. We also thank The University of Western Australia who awarded a University Postgraduate Award to a PhD student for this research. This research was supported by Register4 through its members' participation in research and/or provision of samples and information. We wish to thank Heather Thorne, Eveline Niedermayr, the kConFab research nurses and staff, the staff of the Family Cancer Clinics, and the Clinical Follow Up Study (which received funding from the NHMRC, the National Breast Cancer Foundation, Cancer Australia, and the National Institute of Health (USA)) for their contributions to this resource, and the families who contribute to kConFab. kConFab is supported by a grant from the National Breast Cancer Foundation, and previously by the National Health and Medical Research Council (NHMRC), the Queensland Cancer Fund, the Cancer Councils of New South Wales, Victoria, Tasmania, South Australia and Western Australia.